The Myotonic Dystrophy Foundation (MDF) is a global nonprofit organization established in 2007. It is dedicated to enhancing the quality of life for individuals living with myotonic dystrophy (DM) and advancing research for treatments and a cure. As the largest patient advocacy group focused on DM, MDF serves tens of thousands of individuals and families across the United States and in over 139 countries.
MDF's mission revolves around three key areas: Community, Care, and a Cure. The organization supports and connects those affected by DM through education and outreach, provides comprehensive support and advocates for improved clinical care, and funds research to develop effective therapies. MDF offers various services, including emotional support, educational resources, a toolkit for newly diagnosed families, a staffed phone support line, and an extensive digital academy with webinars. They also host the largest annual conference dedicated to myotonic dystrophy, bringing together patients, families, and experts. With over $25 million invested in research, MDF collaborates with medical professionals to improve care and advocate for policies that support drug development and patient services.
The Myotonic Dystrophy Foundation (MDF) is a global nonprofit organization established in 2007. It is dedicated to enhancing the quality of life for individuals living with myotonic dystrophy (DM) and advancing research for treatments and a cure. As the largest patient advocacy group focused on DM, MDF serves tens of thousands of individuals and families across the United States and in over 139 countries.
MDF's mission revolves around three key areas: Community, Care, and a Cure. The organization supports and connects those affected by DM through education and outreach, provides comprehensive support and advocates for improved clinical care, and funds research to develop effective therapies. MDF offers various services, including emotional support, educational resources, a toolkit for newly diagnosed families, a staffed phone support line, and an extensive digital academy with webinars. They also host the largest annual conference dedicated to myotonic dystrophy, bringing together patients, families, and experts. With over $25 million invested in research, MDF collaborates with medical professionals to improve care and advocate for policies that support drug development and patient services.
